Awareness is an overreaching aim of everything Lupus Link Minnesota does and offers. Lupus is an autoimmune disease and some 50 million Americans are living and coping with over 100 different types of autoimmune disease. Despite the fact that these diseases account for billions of dollars in annual health care costs, they are still a poorly recognized category of illness. Likewise, autoimmune diseases are often perceived incorrectly as rare and are then misdiagnosed as psychosomatic (“all in your head”).
Increasing awareness, even in the smallest of ways, will help expedite future diagnoses, drive fundraising for lupus research, and spur others to reach out to their networks.
Awareness efforts include, but are not limited to:
- Lupus Link Minnesota publishes a newsletter to keep interested parties up to date on lupus-related research, organizational happenings, and opportunities to get involved.
- Social media platforms – Facebook, Twitter, YouTube, and LinkedIn – allow followers to share lupus and related autoimmune disease knowledge with their networks. Tag Lupus Link Minnesota with your awareness activities.
- Members of the media can find press releases and information for stories here. For more information about Lupus Link Minnesota or to schedule an interview with the executive director of the organization, please contact us at firstname.lastname@example.org.
Get our e-newsletter sent to your email inbox every other month and stay on top of the latest in lupus discoveries, breaking news and ways to get involved.
Meet some of the "Kaptains" behind the teams participating in The Great (Point) 8K -- the short walk, going a long way to raise awareness and funds for lupus -- that happened in October 2017. These "Kaptains' Korner" stories truly demonstrate the impact of autoimmune diseases on individuals and their families, as well as the critical need for awareness and continued advancements in research.