Bonnie Fossum, Kaptain
Luscious Lupus Warrior
Meet Bonnie. She describes herself as resilient, bold, fun, an optimist, a mom, genuine, and sensitive.
Bonnie is a newcomer to the lupus community. Registering for The Great (Point)8K, she created a team, “Luscious Lupus Warrior,” a name that “just popped” into her head because that’s how she sees herself: luscious, lively, fun, and energetic.
Despite having lupus, Bonnie says “I am still that person inside. Now, sometimes she is simply screaming to be let loose, as she is often hidden behind the pain and lethargy of this hateful disease.” Bonnie saw participation in this event as a way to connect with others going through the same battle. She also saw it as a way to simply be part of a bigger team to fight lupus and raise awareness together.
Bonnie has systemic lupus erythematosus (SLE) with antiphospholipid syndrome and arthritis. Symptoms -- digestive issues, joint pain, severe complications with both of her pregnancies, unexplained swelling, anxiety, headaches -- started years ago, but neither she nor her doctors ever put all the symptoms together for a definitive diagnosis. Her diagnosis came the day before Christmas last year and she says:
One of the biggest ways lupus has affected Bonnie’s life is her need to compromise on day-to-day activities:
One of Bonnie’s strongest sources of support is her family. Because of this disease, they have had to readjust their roles and learn how to deal with lupus, too.
That means her husband helps out around the house with tasks like making the kids’ lunches.
That means her daughter does Bonnie’s hair and makeup on days when her hands and elbows aren’t cooperating and she’s in so much pain she can’t hold a hair dryer.
That means her son gives her a hug when he knows she’s having a bad day.
“These things are what I so appreciate!” Bonnie proudly shares.
Beyond her family, close friends, and co-workers, Bonnie also connects with others through Instagram and Facebook. “Just knowing that someone else can relate is a huge comfort,” she said. “They are all virtual strangers, but together we are a large community that can really lift one another up.”
Before signing off, we asked Bonnie what she would say to those thinking about registering for The Great (Point)8K. Her response is sure to motivate: